Narcolepsy - Symptoms (2024)

Not everyone with narcolepsy has the same symptoms. Some people have symptoms regularly, while others are less frequently affected.

Narcolepsy is usually a long-term (chronic) condition. Symptoms may develop slowly over a number of years, or suddenly over the course of a few weeks.

You should see a GP if you think you may have narcolepsy so they can find out what's causing your symptoms.

If necessary, you'll be referred to a sleep disorder specialist, who can confirm the diagnosis.

Find out more about diagnosing narcolepsy.

Excessive daytime sleepiness

Excessive daytime sleepinessis usually the first sign of narcolepsy. It can have a significant impact on everyday life.

Feeling drowsy throughout the day andstruggling tostay awake makes it difficult to concentrate at work or school.

People with narcolepsy may be misjudged as being lazy or rude.

Sleep attacks

Sleep attacks, where youfall asleep suddenly and without warning,are also common in people with narcolepsy. They may happen at any time.

The length of time a sleep attacklasts will vary from person to person. Some people will only have "microsleeps" lasting a few seconds, whereas others may fall asleep for several minutes.

If narcolepsy is not well controlled, sleep attacksmay happen several times aday.

Cataplexy

Most people who have narcolepsy also experience cataplexy, which is sudden temporary muscle weakness or loss of muscular control.

Typical symptoms of cataplexy are:

  • the jaw dropping
  • the head slumping down
  • legs collapsing uncontrollably
  • slurred speech
  • double visionorfinding it difficult to focus

Cataplexy attacks are usually triggered by an emotion, such as excitement, laughter, anger or surprise.

Attacks can last from a few seconds to several minutes.

Some people with narcolepsy have cataplexy attacks once or twice a year, while others have them several times a day.

Sleep paralysis

Some people with narcolepsy experience episodes of sleep paralysis. This is atemporary inability to move or speak thatoccurs when waking up or falling asleep.

The episodes can last from a few seconds to several minutes. Although sleep paralysis does not cause any harm, being unable to move can be frightening.

Other symptoms

Narcolepsy can also cause a number of other symptoms, including:

  • hallucinations–seeing or hearing things that are not real, particularly when going to sleep or waking up; a presence in the bedroom is the most commonly reported hallucination
  • memory problems
  • headaches
  • restless sleep–for example, having hot flushes, waking up frequently, having vividnightmares,or physically acting out dreams
  • automatic behaviour –continuing with an activity without having any recollection of it afterwards
  • depression

Speak to a GP if you have narcolepsy and it's making you feel low or depressed.

They can advise you about how to minimise the effect narcolepsy has on yourdaily life.

They can also put you in touch with narcolepsy organisations or support groups, such as Narcolepsy UK.

Page last reviewed: 30 December 2022
Next review due: 30 December 2025

Narcolepsy - Symptoms (2024)

FAQs

Narcolepsy - Symptoms? ›

Many cases of narcolepsy are thought to be caused by a lack of a brain chemical called hypocretin (also known as orexin), which regulates sleep. The deficiency is thought to be the result of the immune system mistakenly attacking parts of the brain that produce hypocretin.

What triggers narcolepsy? ›

Many cases of narcolepsy are thought to be caused by a lack of a brain chemical called hypocretin (also known as orexin), which regulates sleep. The deficiency is thought to be the result of the immune system mistakenly attacking parts of the brain that produce hypocretin.

Am I narcoleptic or just tired? ›

Excessive daytime sleepiness is usually the first sign of narcolepsy. It can have a significant impact on everyday life. Feeling drowsy throughout the day and struggling to stay awake makes it difficult to concentrate at work or school. People with narcolepsy may be misjudged as being lazy or rude.

Is narcolepsy a mental disorder? ›

Narcolepsy is a chronic neurological disorder that affects the brain's ability to control sleep-wake cycles. People with narcolepsy may feel rested after waking, but then feel very sleepy throughout much of the day.

Can narcolepsy go away? ›

There's currently no cure for narcolepsy, but making changes to improve your sleeping habits and taking medicine can help minimise the impact the condition has on your daily life. Taking frequent, brief naps evenly spaced throughout the day is one of the best ways to manage excessive daytime drowsiness.

What can be mistaken for narcolepsy? ›

Narcolepsy is often misdiagnosed as other conditions that can have similar symptoms, including:
  • Depression.
  • Anxiety.
  • Other psychologic/psychiatric disorders.
  • Insomnia.
  • Obstructive sleep apnea.

What age does narcolepsy start? ›

Narcolepsy typically begins between ages 10 and 30. Family history. Your risk of narcolepsy is 20 to 40 times higher if you have a close family member who has it.

How do you test yourself for narcolepsy? ›

You shouldn't try to self-diagnose and self-treat narcolepsy. That's because the symptoms of this condition happen commonly with other conditions like sleep apnea or epilepsy, which are also dangerous.

How do doctors tell if you have narcolepsy? ›

Multiple sleep latency test

You'll be asked to take several naps throughout the day, and a specialist will analyse how quickly and easily you fall asleep. If you have narcolepsy, you'll usually fall asleep easily and enter rapid eye movement (REM) sleep very quickly.

What is the best medication for narcolepsy? ›

Stimulants. Drugs that stimulate the central nervous system are the primary treatment to help people with narcolepsy stay awake during the day. Your health care provider may recommend modafinil (Provigil) or armodafinil (Nuvigil). These medicines aren't as habit-forming as older stimulants.

Is narcolepsy a disability? ›

Narcolepsy is a recognized disability under the Americans with Disabilities Act. Under this law, your employer must make reasonable accommodations, like letting you adjust your schedule or take brief rest breaks, to deal with your narcolepsy symptoms.

What aggravates narcolepsy? ›

A problem with the immune system causes it to attack the cells that produce hypocretin. The lack of this chemical is what leads to sleep attacks. A drop in hypocretin is part of narcolepsy with cataplexy, where strong emotions, especially laughter or surprise, trigger a sudden loss of muscle tone.

What personality changes with narcolepsy? ›

The authors found a higher recurrence of anxiety/depression, withdrawn attitude, social, thinking, and attention problems, somatic complaints, and aggressive behaviors in the patients with narcolepsy type 1 compared to controls, suggesting a relationship with sleepiness.

Does caffeine help narcolepsy? ›

Some people with narcolepsy find coffee or other caffeinated beverages helpful to staying awake. For others, coffee is ineffective, or, in combination with stimulant medications, it can cause jitteriness, diarrhea, anxiety, or a racing heart.

What foods should be avoided with narcolepsy? ›

Glucose = Carbohydrates & Sugar

To be crystal clear, all the bread, pasta, cereal, potatoes, rice, fruit, dessert, candy, and sodas we consume will raise your blood glucose levels and turn your orexin OFF.

Can you drive if you have narcolepsy? ›

You need to be medically able to drive, which includes being able to stay awake. The National Highway Traffic Safety Administration (NHTSA), the government agency that oversees highway safety, says that people with narcolepsy should only drive if they're on a treatment that helps them stay awake.

Can you fight off narcolepsy? ›

Narcolepsy is treatable but not curable. Treatments usually start with medications, but changes to your daily routine and lifestyle can also help. In general, narcolepsy responds well to treatment, which helps limit the disruptions that symptoms can cause.

Can narcolepsy be caused by anxiety? ›

Recent studies have found that hypocretin is linked to short- and long-term stress. Long-term stress may disrupt the function of hypocretin in the brain, possibly triggering narcolepsy.

What are the autoimmune causes of narcolepsy? ›

There is increasing evidence that narcolepsy is an autoimmune disorder. Autoimmune disorders are caused when the body's immune system mistakenly attacks healthy tissue or cells. In narcolepsy, the immune system destroys certain brain cells that produce a peptide called hypocretin.

Can a person with narcolepsy be woken up? ›

People can be awakened as readily as from normal sleep. They typically feel refreshed when they wake up even when the sleep episode lasts a few minutes. However, they may fall asleep again in a few minutes.

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